Black Women’s Health Imperative launches rare disease coalition – Good Morning Washington
WASHINGTON (ABC7) — For more than 35 years, the Black Women’s Health Imperative has been at…
Building awareness around the health disparities specifically with respect to rare disease, that many communities of color face.
RISE for Rare, aims to ultimately reduce the time from symptoms to diagnosis, enhance the quality of care and improve health outcomes for patients of color.
The Rare Disease Diversity Coalition is led by BWHI and a steering committee comprised of industry, advocacy and community leaders with the support of the founding sponsor Travere Therapeutics, Inc., a biopharmaceutical company dedicated to identifying, developing, and delivering life-changing therapies to people living with rare disease. The Coalition was established at a pivotal time, as the country continues to grapple with the impact of the ongoing COVID-19 pandemic and the painfully evident disparities that exist among communities of color regarding infection rates, treatment and access to care.
Did You Know?
A disease is rare when it affects less than 200,000 Americans at any given time. Rare diseases are responsible for 35% of deaths in the first year of life.
Half of those affected with rare diseases are children. 30% of these children will not live to see their 5th birthday.
Rare diseases affect 300 million people worldwide. Approximately 4% of the total world population is affected by a rare disease at any given time.
The Lastest from the Rise for Rare Campaign
Black Women’s Health Imperative Announces The Rare Disease Diversity Coalition’s “RISE For Rare” Campaign
WASHINGTON, Nov. 18, 2020 – Today, the Black Women’s Health Imperative (BWHI) announced the launch of…